If you suffer chronic pain I don’t need to tell you that it’s a battle, if you don’t, its a battle!
Last winter I became depressed and finally in March I contacted the pain clinic that I attend and told them, in September I finally saw their psychologist.
I cope one day at a time and I know that’s all anyone can do but what I mean is that I can’t look to the future, I have CRPS (complex regional pain syndrome) and there is no cure and the meds don’t actually stop the pain.
Its a battle, I wake up in pain and I spend the whole day in pain and then I try to sleep in pain and there is no support for people in my situation, as I mentioned in a previous post, I was recently asked what my care plan is and I laughed, I laughed because there isn’t one. I see the pain clinic consultant every six months and nothing changes.
I really started to think about this last night when I saw an amazing advert on TV for Marie Curie cancer care, it was people talking to a person that then transformed into a hovering light and then it said Marie Curie “Light in the darkest hours”. It was such a very well thought out advert and was so nice, but it made me think about the fact that you only have access to this sort of help if you have cancer, MS, had a stroke or any of the major illnesses, if you just suffer chronic pain then, well you’re on your own.
Yes there are forums, Facebook groups and privately run websites but there isn’t a dedicated helpline or visiting professionals, that will visit when you are at your worst.
I am very lucky to have an amazing wife and two daughters who support me, I am very rarely alone and yet there are times when I can still feel alone. This is where Twitter, Facebook and forums are beneficial, I have people on there who live with chronic pain and therefore they understand the struggle of living like this, its strange how I am also able to offer support despite struggling myself.
Yesterday I spoke with the physio about massage, not the standard physio type massage though. I asked if the hospital works with massage therapists, I had a back massage a couple of weeks ago and it was the most beneficial thing I have had for my health in a very long time, but there isn’t and I was told that if that’s what I need, then I need to pay for it myself.
Now I realise that our NHS is struggling with cuts to their budgets but I know of people getting massage and aromatherapy massage from the NHS, this is for cancer patients and other major illnesses and yet because it’s “just” chronic pain, they can’t help.