A very frustrating part of having ME/CFS is my ability to cope with multiple conversation or noise, actually I’m not sure if that’s how to put it, but it will have too because my brain is fairly foggy this morning.
What I mean is when there are several conversations at the same time or like when the TV is on and my grandson is crying, I can handle him crying but not when the TV is on at the same time or if there is a conversation as well. The amount this affects me depends on how I’m feeling, on a bad day I just have to escape to my bedroom because it fries my brain.
Its only recently that my family have understood and not taken my actions as being stroppy, although it could be that I have just actually explained that they shouldn’t take offence because I’m just struggling.
I believe they call it sensory overload, its something that people who are high on the autistic spectrum suffer from and I now understand why a child who has autism can suddenly have a meltdown.
At home I can control this problem, well within reason because I do have aware and two daughters and wow they can talk for hours about practically nothing. Then of course my grandson who is nine months old has decided that when he is tired, its best not to go to sleep but cry and scream because he is tired, I love the little man so much but it can be very difficult when I am having a rough day.
Luckily our local neighbourhood is quiet one (have I tempted fate?) and so that helps, coupled with the fact that our lounge is at the back of the property and so I don’t notice what’s going on during the day.
Its not only noise that can cause sensory overload,
Then of course our skin can suffer from sensory problems and I have occasions where even the bed sheets are too much, CFS and fibromyalgia is way more than just fatigue and its difficult to fully explain what is happening to us because half the time I’m not sure.