Okay, I promise I will rest.

I’m struggling with energy levels, well more than normal and its driving me mad!

Yesterday I sat in the dining room to build a prototype circuit board and tackle some code for the board, its not a physical task in any way, I’m sat in my wheelchair and using a laptop and handling small components but it wasn’t long before I started sweating. I stopped and went into the lounge to lay on the settee and I got hotter and hotter, I then start to get that horrible feeling of confusion and just feeling like crap.

This is happening a lot lately, small tasks are leaving me sweating like I did when I used to run ten miles when I was younger and its starting to worry me. I’m not good at resting up completely, I need to at least do one thing that day and I’m happy if that is helping my wife clear the kitchen after dinner or watering the potted plants on the patio and these are small tasks that shouldn’t cause a problem.
So I’m booked in to see the GP this afternoon and I have also promised my wife that I will not leave the settee other than toilet trips and insuring to be very hard to do. The only time I have rested up completely is when I have been in hospital and that’s because then I really have no choice.

Life as a spoonie can be so hard, people don’t understand what real fatigue is and they think it’s just tiredness. Real fatigue hits you physically and mentally, it affects my speech and my cognitive thinking, it leaves me susceptible to sensory overload and causes a pain flare up.

So here goes for what will be a mind numbing week, its me and the TV remote, oh and my tablet but I will cut down on the time I spend using it.

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